Good Morning Everyone,
I haven’t updated in awhile so I want to say hello to those few who do follow and read my occasional blog! I appreciate it 🙂 Today I want to talk about Autoimmune Disease a little bit. **The biggest reason I haven’t logged in is to write is because I have been dealing with BOTH**😖😷
The biggest issue I have with my autoimmune disease is that well it’s still under the umbrella of we dont know which auto imunne disease you have yet but in time the more you get sick the more clues we find out.🧐 So my clues are; Epilepsy (possibly), Vasculitis, Celiac Disease…weird combination. Lupus does run in my family so that hasn’t been ruled out yet.
The biggest issue I have is not just the flare ups it’s when they flare up and how often. I do have have insurance but it doesn’t cover everything like state insurance would. I cannot get state insurance because of my husband’s income. We filed bankruptcy before COVID19 hit and since then it’s just been a prayer a disaster to get through the medical bill’s🤯 For example I have one bill that is over 1,000 for going to the emergency room for stomach pain that was out of this world and swelling. This was before I knew it was celiac I thought my appendix was going to burst.
They gave me Ibuprofen and a CT and told me there was nothing else they could do. I was in a wheelchair because the pain was so bad and then they wheeled me back out after sitting in the HALLWAY next to people throwing up 😷 for 3 hours . I will never EVER go back to that hospital. My husband had to call Administrative for someone to help me. Then I later learned its nickname was Kentkillmore Hospital…..
So a few more tests where done I went to a Gastroenterologist and she told me to back to the ER which I didnt want to they tested me for COVID which was negative then I had a colonoscopy and endoscopy which ended short because I stopped breathing…fun times(apparently I have sleep apnea). I was biopsied and told I have inflammation but unknown from where more labs were done and then I get a Phone Call yesterday that my Celiac levels are high. 🥴 So finally some answers after an expensive hunt to find why I could barely walk.
I did start a GoFundMe recently I will share the link! No matter what you go through remember to not give up. I wanted answers and to not be in pain so I could actually enjoy life with my 3 kids.
Here is my GoFundMe link any help counts even a prayer and thank you for Reading! gf.me/u/zkwkxi